There are 50 new people who know all about Jacquie, her story, and this amazing foundation. This morning, I was given the opportunity to give a presentation in one of my MBA classes at UB about this foundation and the Ride for Roswell. Everyone wanted to know about the events, and how they can get involved. Jacquie continues to inspire and touch people from all over the world to fight back. Presenting is one of my biggest fears, but I have never before felt more confident than I did talking about Jacquie. I felt so strong and so ready to inspire everyone in the room to join in our fight and to BELIEVE. I’m thinking of you all every single day. I’m here for you always.<3 Mindy
For the Hirsch family 4… a smile, a tear, a lump in my throat, a pit in my stomach, these things will never go away just as the wonderful memories I have will always stay close in my heart. We will always remember and we will keep believing in the times that it hots so hard. Loving you all and always squeezing your hand ever so tight. Sara
Our family rented and watch the new Tinkerbell movie tonight. Cried (and turned it very loud) when the song Believe was played. Jacquie is everywhere. Always thinking of Jacquie and the pain you go through everyday without her. You are a very very strong family.
big, it’s been too long. this alumni weekend we had four generations of your bebs around town. ali and i snuggled on friday and had a good cry over missing you — i really needed it. i obviously sobbed on saturday night when it was all ending, one of your famous moves — crying (like at a sisterhood retreat or during a random spring semester that you weren’t even graduating) but fistpumping right on through. THE NEW MEMBERS HAVE TO KNOW WHO I AM!! i’m pretty much the most special alumni bc my title is “jacquie hirsch’s little” hahaha i am not … super fantastic sdt samm silverman, i am…. jacquie’s little. i don’t hate it. i’ll never forget the night you told me you stalked me and oops it slipped – you were taking me. it was when holly had her “hott holly” sticker, and you were “hot holly’s little” and i was (“eeeeeek”) going to be “hot holly’s little little.” i think i told you at least once per weekend that i was ruining our family line and i didn’t know why you picked me … but just like i think i made you proud, big, our little ones make me so proud. i miss you so much sometimes my heart actually hurts. it’s still so hard to grasp that you’re not a phone call away anymore. or a block away. btw….. i absolutely loathe soco lime shots — but i keep taking them. i never want to forget you. i love you<3 -little samanthamum.
Dear Sharon,Tory, T.J. And Angel Jacquie, Please know our family is sending prayers of strength love and hope to all of you. Always clapping ,praying ,BELIEVING Missy
My Dearest Jax, Its been awhile since I posted a note but you know that I talk to you everyday. It was quite a ride on Monday. I visited our spots at Letchworth and of course had a big lunch at the Glen Iris. Thanks for so many “signs” to let me know you were watching over me. You out did yourself with the “Angel in Heaven” dish on the menu. It was a beautiful day, with a stop in Geneseo to visit the house and Ali & Kelly. I had a bit of a tough time today with the first parent meeting when for the first time I mentioned you, the founadtion and our committment to help others. In retrospect it was about the time my good friend Paul was on his way to you my angel. Maybe another sign. I was very proud of his brave fight against ALS and comforted that I had the opportunity to spend as much time with him as I did. Show him around the heavens, I know he is looking to be with his Mom. Keep shinning down on us and provide us with additional courage when we run low. I miss you so very much Jax and I know you know, how much I love you. What I didn’t tell you on a regular basis was how incrediable your friends are. Please find me in my dreams. I love you ! Dad
Just the other day, I received a gift from a parent of one of the soccer players on the varisty team that my boyfriend coaches. She came up to me at the game and told me that she had found something for me, she dug in her pocket and pulled out a packet of Tinkerbell silly bands. I had told her about a month ago, that although I do not like silly bands because all of the kids are constantly playing with them at school, I would wear a Tinkerbell one because of Jax. When she was at Walmart she saw a pack and got them for me, so now I have lots of them and I wear one every day. God bless you Hirsch family, all 4 of you. Casey
This is from a book I’m reading: I won’t say “I know how you feel” – because I don’t. I won’t say “You’ll get over it” – because you won’t. You may hear all these platitudes from people. They think they are helping. They don’t know what else to say. Many will avoid you because they can’t face you. Others will talk about the weather, the holidays and the school concert, but never about how you’re coping. So what will I say? I will say “I’m here. I care. Anytime. Anywhere.” I will talk about your loved one. We’ll laugh about the good memories. I won’t mind how long you grieve. I won’t tell you to pull yourself together. No, I don’t know how you feel – but with sharing, perhaps I will learn a little of what you are going through. Thank you guys for sharing your story. All my love, Lauren
Think of you all everyday… but my prayers are with you now especially… You are doing an amazing job keeping Jacquie’s memory alive and helping other people get through this! Love you all- Kathleen
Dear Sharon, Torey, TJ, and “forever Jacquie”Just wanted to let you know that my thoughts and prayers were with all of you on Monday. At dinner that evening, my granddaughter mentioned something about “Tinkerbell” and I told her what significance the day held. She knows of Jacquie and her journey, so that day became more than just another September day. Stay strong – you are such an incredible family and you inspire everyone by your courage and determination to see Jacquie’s dream fulfilled. God bless all “4” Hirsch’s.
Just thinking about you Jacquie, all that we have learned from you and everything that your family continues to do for the foundation. Thoughts, prayers and lots of love always and forever
No words can ever express the feelings that so many feel. So many questions and struggles to understand. Why? Why do we live to face the hurt? Faith and Belief are all that we have to lead us through these struggles along with the love of so many standing by to offer strength. I am standing by you with love, and faith and belief. I am thinking of you and praying for you EVERY day. God’s Blessings
Short and sweet.Thinking of you and your family during this sad ’anniversary’ of sorts. May you find strength in memories and the hope for the future. The Hirsch family has done so much to help find a cure, and they each are heroes in my book, especially Jax.Regards,Doug T
Lord make me a rainbow, I’ll shine down on my motherShe’ll know I’m safe with you when she stands under my colors. I put on my Jacquie shirt before it hit me what day it was…I am forever thinking about you Jax. I saw your full double rainbow the other day and it made me smile to think that you were there with me. Always sending my prayers and love Hirsch’s. God bless.
Your family is always in my thoughts and prayers, but even more right now. Thinking of you all today and still believing. I hope your day is filled with wonderful memories!
Dear Sharon, Torey & T.J.; You’re in my thoughts today and wish I could say the magic words to ease your pain. I’ll always be there for you all. Today will always be the worst day for the rest of our lives! Miss you my angel….
Dear Hirsch’s,Thinking of your family today. Though I didn’t really know Jacquie I heard this song recently and it made me think of her.I Believe by Diamond RioEvery now and then soft as breath upon my skinI feel you come back againAnd it’s like you haven’t been gone a moment from my sideLike the tears were never criedLike the hands of time are holding you and meAnd with all my heart I’m sure we’re closer than we ever wereI don’t have to hear or see, I’ve got all the proof I needThere are more than angels watching over meI believe, Oh I believeChorusNow when you die your life goes onIt doesn’t end here when you’re goneEvery soul is filled with lightIt never ends and if I’m rightOur love can even reach across eternityI believe, Oh I believeForever, you’re a part of meForever, in the heart of meI will hold you even longer if I canOh the people who don’t see the mostSee that I believe in ghostsAnd if that makes me crazy, then I am’Cause I believeOh I believeThere are more than angels watching over meI believe, Oh I believeEvery now and then soft as breath upon my skinI feel you come back againAnd I believe
I know what a sad day today is for all of you, and I am sorry you have to experience the pain this date brings. The work you are doing to find a cure for this hated disease is remarkable. Thank you for all your hard work.
Hi Jax we miss you so much, the emptiness will never go away. We miss your smile your laugh…we miss you. We went to Rascal Flatts last night and you were there, you will always be with us. Not a day goes by without something making me think of our Tink and how much we miss you. I can’t believe it has been 2 years…It doesn’t get any easier. Keep smiling down on your Mom and Dad and TJ…They are working so hard to make your dreams come true. Constantly BELIEVEING….always missing and loving you!!
I’ve started my past three years teaching incorporating Jacquie’s “Life” poem into one of my lessons for my 7th graders. This year they had to write a poem about choices and I included hers as an example…I wanted to share a few poems they wrote with you so you can see how her words are inspiring students: “Life is like a road sometimes you can see so clearly other times it dark, filled with confusion. Thoughts as black as night You choose the road you take how fast you travel and where you want to go. Others may crash. Some may fall out of line its your choice, your path, you be the driver of your own life, you find your own road” “The sun shines bright Gone is the night Time to begin a new day Do I want to get up and study or go outside to play? My life is all about decisions In my mind, I see my future through other’s visions I must study hard to move ahead Making many sacrifices in my life instead To be a great doctor is my choice Instead of store clerk or singer, rejoice! I want to heal people and save lives My days of sleeping will soon be deprived No longer a kid with carefree days Do I really want this or is it just a phase? No, I believe this is what I want to do Medical profession’s what I am into Fixing people with cuts and broken bones Diagnosing diseases still unknown Do I want to be a surgeon or pediatrician? It really doesn’t matter saving lives is my mission I will treat any person white or black I will be the doctor to pick up the slack No matter what the condition will be I would hope that the other doctors agree For a decision could be a matter of life or death Will I show regard for the patient’s last breath?” and then a sad one that reflects the opposite of your own pain but is so powerful, especially from a 12 year old: “The water drifts away each day I have to wake up to a new beginning where I have no woman to look to I have to see that it’s not my fault But I have to choose what I want to do I want to see the one that held me in her arms but I know she is very far I look up each day at a star and make a decision to stay” Jacquie and you all are in my thoughts every day…<3 Colleen
This might be too long for you to read. I didn’t plan on it being so long.It has taken me so long to look at this website again although I haven’t forgotten about you, your daughter and your family.I stopped reading after a long time because I couldn’t go back to those feelings I had at that time in my life when I started to read about you. I used to read the obituaries everyday. Trying to figure out how old he or she was when they died? Trying to figure out how they died. Was it cancer? an accident? I would find comfort when I felt the people lived long lives. Though their family would want more days with them they seemed to follow the “natural” course of life. That is how I came upon your story. I used to read what you wrote almost everyday. I thought you could put into words so perfectly about a mother and a daughter, about a mother and her children. I thought you could understand the pain, fear and feelings of being apart from them. Thank-god I have never had to actually feel those feelings but the thought of them scared me beyond words. You may remember a few of my messages I sent you but probably not. I found out more then five years ago right after the birth of my youngest daughter that I had a brain tumor. The outcome was uncertain. I spent too much time in MRI machines and doctors offices. Everything was going well, no changes in my scans at all. The tumor was behaving very benign. The whole time my only fear was being away from my children. As you know children need their Moms forever. They cannot be apart. Then I experienced another fearful reality. I started to have grandmal seizures. They were difficult to control, and at times they seemed too much to bear. Not for me but for my children. I felt lucky it was happening to me and not to them. I couldn’t drive for a long time. The medications were tough and will have to deal with that part for the rest of my life. It seems almost foolish to even mention these, what seem like small obstacles compared to what you have been through.I feel ridiculous thinking that it was all that bad or is that bad. I have to say I was kind of counting time as do you. I just kept wanting to make it to certain milestones with my kids. I wanted to make it to at least see my youngest turned five. I wanted to watch her go to kindergarten. They needed me to be there. I wanted my kids to beable to get to ages when they could have memories of me. I would think, how old do they have to be to have memories of me? I have to make it until then. The list is endless. I always thought I’m going to be the absolutly best Mom I can be as long as we get to be together. Some kids don’t have Moms and my kids will have the best one as long as they can. They will never see me struggle or be afraid. I take pride in the fact that I have done this pretty well. Kindergarten, middle school,boyfriends, everyday advice I can give them I need to be there. I would think- I have to get them until they can can be independent. They would always need me but what is it 18? 21? what age will they be ok? After I kept experiencing these times and “milestones” I just keep wanting more and more. I realized it will never be enough. I realized I will always keep wanting more and more and will cherish, with every bit of myself, every second I get with them. It truly is a gift. I know I went on for way too long. For some reason I feel I can express to a stranger, what I can’t to the people I am closest to. It looks like I get to be with them for a long time more. Things are going well. The tumor is still there, the seizures are still there, the scans will continue, but I am ok. I am going to be ok. I will be here and with them for a long long time. Though our experiences have been so different and yours an actual reality and mine just a fear. You actually helped me through it. What you wrote made me feel like someone can really understand how I feel about my children. I read the courage and heartache you have experienced. You are a brave and an unbelievable person. Even though it doen’t always feel that way. Jacquie has the best Mom ever. You are always her Mom. I will continue to cherish every second with my kids. I feel, as do you, that I was given the absolute best children ever. How did I get so lucky? You are also got the best children a Mother could ask for. I hope it is ok, but I copyied you when my son started asking me what happens when you die. I tell him we (our family) is a little “five pack”. No matter where we are we will always be together. Our little five pack. I am sorry this is so long. I am sorry it is all over the place. I am a horrible writer. I just wanted to Thank-you. Thank-you so, so much. Now all I have to do is hit the enter button. Jackie
Remembering everything, along the way and sending to you Sharon, Torey and TJ an extra breath when you so much need one. Always caring, always missing, sending a hug…and fyi-Shelby makes my kids hearts smile every time! ~It is so tough, still, and always.
I miss you more than ever Jax. With each passing day I struggle to comprehend why you are not going through life beside me. It was always the two of us and in my heart, it always will be. Keep a close eye on us, but fly high in heaven on those wings my angel Tink. Love Always and forever, your big brother.
still thinking of you and missing you and loving you every second of every day. i recently went on vacation with some of beege’s family and had the chance to tell the kids that i knew a REAL tinkerbell and a real angel! and i told them all about you and how beautiful you are, and how funny, caring, and strong and brave! i miss you beautiful angel, oh so much. some days it still doesn’t seem real. xoxo <3 alicia <3
Dear Family, It has been almost 2 weeks since the Tinkerball and I continuously think about that night and how amazing it was. Not only did I have the best night of my life, but while I was having so much fun, I knew that all of this time, effort, hard work, was all for Jacquie and that is what made my night so very special. I am so thankful for being apart of raising money for Jacquie’s foundation and over all, being apart of remembering her. I will never ever stop supporting this foundation because it has touched my heart and has changed my life along with so many others. So I thankyou all for allowing me to be apart of this journey to continue to honor Jacquie Love Always, Natalie Maranto
Last weekend I was at home, and my dad asked me to help brush our dog, Baby’s, teeth. She is a 9 year old rescue dog (a pug of course) and she has dental issues and needed 9 teeth removed recently, so brushing is a daily routine that she must endure. After her surgery, my dad went out to buy an extra-soft tooth brush for her, and the only one that happened to be left was a pink Tinker Bell brush. How fitting. I know Jax would have loved our Baby Cakes, and I know she played a part in helping her find us, and now we are reminded of her once again, each night as we complete the routine. TJ, I can still hear Jax’s laugh too and see her nose crinkle as we cried because we laughed so hard over the “eeking” story the last time I saw her. I hope that that sound and that memory never ever fades for either of us. God bless, always praying and always, always BELIEVING. Casey
Dear Sharon & Family; I’m so sorry that I missed the “Ball”! I really looked forward to being with my boys & possibly getting them to dance with me but unfortunately it was the day my brother “Stan” became ill. Well now we’ve got another angel to look over us and Jacquie is going to have her hands full with that one! So don’t you dare not have the “Ball” again next year because I WILL BE THERE!! I’m so glad it was a success.
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Mindy Long says:
October 7, 2010 at 11:58 am -
There are 50 new people who know all about Jacquie, her story, and this amazing foundation. This morning, I was given the opportunity to give a presentation in one of my MBA classes at UB about this foundation and the Ride for Roswell. Everyone wanted to know about the events, and how they can get involved. Jacquie continues to inspire and touch people from all over the world to fight back. Presenting is one of my biggest fears, but I have never before felt more confident than I did talking about Jacquie. I felt so strong and so ready to inspire everyone in the room to join in our fight and to BELIEVE. I’m thinking of you all every single day. I’m here for you always.<3 Mindy
Sadie says:
October 4, 2010 at 10:09 pm -
I think of Jacquie everyday. Just wanted you to know that. I love you guys and am here for you always. <3 ~Sadie
Sara (albuquerque) says:
October 1, 2010 at 10:53 pm -
For the Hirsch family 4… a smile, a tear, a lump in my throat, a pit in my stomach, these things will never go away just as the wonderful memories I have will always stay close in my heart. We will always remember and we will keep believing in the times that it hots so hard. Loving you all and always squeezing your hand ever so tight. Sara
Anonymous says:
October 1, 2010 at 10:31 pm -
Our family rented and watch the new Tinkerbell movie tonight. Cried (and turned it very loud) when the song Believe was played. Jacquie is everywhere. Always thinking of Jacquie and the pain you go through everyday without her. You are a very very strong family.
lil sammie says:
October 1, 2010 at 6:33 pm -
big, it’s been too long. this alumni weekend we had four generations of your bebs around town. ali and i snuggled on friday and had a good cry over missing you — i really needed it. i obviously sobbed on saturday night when it was all ending, one of your famous moves — crying (like at a sisterhood retreat or during a random spring semester that you weren’t even graduating) but fistpumping right on through. THE NEW MEMBERS HAVE TO KNOW WHO I AM!! i’m pretty much the most special alumni bc my title is “jacquie hirsch’s little” hahaha i am not … super fantastic sdt samm silverman, i am…. jacquie’s little. i don’t hate it. i’ll never forget the night you told me you stalked me and oops it slipped – you were taking me. it was when holly had her “hott holly” sticker, and you were “hot holly’s little” and i was (“eeeeeek”) going to be “hot holly’s little little.” i think i told you at least once per weekend that i was ruining our family line and i didn’t know why you picked me … but just like i think i made you proud, big, our little ones make me so proud. i miss you so much sometimes my heart actually hurts. it’s still so hard to grasp that you’re not a phone call away anymore. or a block away. btw….. i absolutely loathe soco lime shots — but i keep taking them. i never want to forget you. i love you<3 -little samanthamum.
michele says:
September 29, 2010 at 3:06 pm -
Still in our hearts and on our minds each and every day
aunt val says:
September 27, 2010 at 12:58 pm -
as always, missing you
Anonymous says:
September 20, 2010 at 1:10 pm -
Just thinking about Jax and your beautiful family…
Anonymous says:
September 13, 2010 at 10:57 am -
Dear Sharon,Tory, T.J. And Angel Jacquie, Please know our family is sending prayers of strength love and hope to all of you. Always clapping ,praying ,BELIEVING Missy
Dad says:
September 12, 2010 at 12:31 am -
My Dearest Jax, Its been awhile since I posted a note but you know that I talk to you everyday. It was quite a ride on Monday. I visited our spots at Letchworth and of course had a big lunch at the Glen Iris. Thanks for so many “signs” to let me know you were watching over me. You out did yourself with the “Angel in Heaven” dish on the menu. It was a beautiful day, with a stop in Geneseo to visit the house and Ali & Kelly. I had a bit of a tough time today with the first parent meeting when for the first time I mentioned you, the founadtion and our committment to help others. In retrospect it was about the time my good friend Paul was on his way to you my angel. Maybe another sign. I was very proud of his brave fight against ALS and comforted that I had the opportunity to spend as much time with him as I did. Show him around the heavens, I know he is looking to be with his Mom. Keep shinning down on us and provide us with additional courage when we run low. I miss you so very much Jax and I know you know, how much I love you. What I didn’t tell you on a regular basis was how incrediable your friends are. Please find me in my dreams. I love you ! Dad
Casey Stiokas says:
September 11, 2010 at 11:59 am -
Just the other day, I received a gift from a parent of one of the soccer players on the varisty team that my boyfriend coaches. She came up to me at the game and told me that she had found something for me, she dug in her pocket and pulled out a packet of Tinkerbell silly bands. I had told her about a month ago, that although I do not like silly bands because all of the kids are constantly playing with them at school, I would wear a Tinkerbell one because of Jax. When she was at Walmart she saw a pack and got them for me, so now I have lots of them and I wear one every day. God bless you Hirsch family, all 4 of you. Casey
Lauren says:
September 9, 2010 at 9:44 pm -
This is from a book I’m reading: I won’t say “I know how you feel” – because I don’t. I won’t say “You’ll get over it” – because you won’t. You may hear all these platitudes from people. They think they are helping. They don’t know what else to say. Many will avoid you because they can’t face you. Others will talk about the weather, the holidays and the school concert, but never about how you’re coping. So what will I say? I will say “I’m here. I care. Anytime. Anywhere.” I will talk about your loved one. We’ll laugh about the good memories. I won’t mind how long you grieve. I won’t tell you to pull yourself together. No, I don’t know how you feel – but with sharing, perhaps I will learn a little of what you are going through. Thank you guys for sharing your story. All my love, Lauren
Kathleen Hogan says:
September 8, 2010 at 12:18 pm -
Think of you all everyday… but my prayers are with you now especially… You are doing an amazing job keeping Jacquie’s memory alive and helping other people get through this! Love you all- Kathleen
Wendy V says:
September 8, 2010 at 9:41 am -
Dear Sharon, Torey, TJ, and “forever Jacquie”Just wanted to let you know that my thoughts and prayers were with all of you on Monday. At dinner that evening, my granddaughter mentioned something about “Tinkerbell” and I told her what significance the day held. She knows of Jacquie and her journey, so that day became more than just another September day. Stay strong – you are such an incredible family and you inspire everyone by your courage and determination to see Jacquie’s dream fulfilled. God bless all “4” Hirsch’s.
Chrisi Pearl says:
September 7, 2010 at 10:03 pm -
Just thinking about you Jacquie, all that we have learned from you and everything that your family continues to do for the foundation. Thoughts, prayers and lots of love always and forever
Jennifer Warnes says:
September 7, 2010 at 4:36 pm -
No words can ever express the feelings that so many feel. So many questions and struggles to understand. Why? Why do we live to face the hurt? Faith and Belief are all that we have to lead us through these struggles along with the love of so many standing by to offer strength. I am standing by you with love, and faith and belief. I am thinking of you and praying for you EVERY day. God’s Blessings
Doug T says:
September 7, 2010 at 10:20 am -
Short and sweet.Thinking of you and your family during this sad ’anniversary’ of sorts. May you find strength in memories and the hope for the future. The Hirsch family has done so much to help find a cure, and they each are heroes in my book, especially Jax.Regards,Doug T
Lauren says:
September 6, 2010 at 11:05 pm -
Thought about the four of you all day <3
Miranda Jensen says:
September 6, 2010 at 10:28 pm -
Today, like every other day, I AM BELIEVING I love you Hirsch family, stay strong With all my love, Miranda Jensen
Casey Stiokas says:
September 6, 2010 at 3:34 pm -
Lord make me a rainbow, I’ll shine down on my motherShe’ll know I’m safe with you when she stands under my colors. I put on my Jacquie shirt before it hit me what day it was…I am forever thinking about you Jax. I saw your full double rainbow the other day and it made me smile to think that you were there with me. Always sending my prayers and love Hirsch’s. God bless.
Cathy and Owen says:
September 6, 2010 at 2:53 pm -
Thinking of all of the Hirsch family today.
Pinchoff says:
September 6, 2010 at 2:34 pm -
Sending my love to the Hirsch family on this and every other day. Jax continues to inspire and teach us… always BELIEVING.
Jena Klein says:
September 6, 2010 at 12:24 pm -
Your family is always in my thoughts and prayers, but even more right now. Thinking of you all today and still believing. I hope your day is filled with wonderful memories!
Pauline Cantatore says:
September 6, 2010 at 11:49 am -
Thinking of you all today! Especially Jax <3
Anonymous says:
September 6, 2010 at 11:47 am -
I still believe and always will… Heaven got a lot brighter two years ago today… I miss you…Love you, life partner…-MA
Sue P says:
September 6, 2010 at 11:35 am -
Dear Sharon, Torey & T.J.; You’re in my thoughts today and wish I could say the magic words to ease your pain. I’ll always be there for you all. Today will always be the worst day for the rest of our lives! Miss you my angel….
ashley says:
September 6, 2010 at 11:14 am -
I can’t believe it’s been 2 years, Jax. You are always in my heart and I think about you often. I love you <3
Heather M says:
September 6, 2010 at 9:53 am -
Dear Hirsch’s,Thinking of your family today. Though I didn’t really know Jacquie I heard this song recently and it made me think of her.I Believe by Diamond RioEvery now and then soft as breath upon my skinI feel you come back againAnd it’s like you haven’t been gone a moment from my sideLike the tears were never criedLike the hands of time are holding you and meAnd with all my heart I’m sure we’re closer than we ever wereI don’t have to hear or see, I’ve got all the proof I needThere are more than angels watching over meI believe, Oh I believeChorusNow when you die your life goes onIt doesn’t end here when you’re goneEvery soul is filled with lightIt never ends and if I’m rightOur love can even reach across eternityI believe, Oh I believeForever, you’re a part of meForever, in the heart of meI will hold you even longer if I canOh the people who don’t see the mostSee that I believe in ghostsAnd if that makes me crazy, then I am’Cause I believeOh I believeThere are more than angels watching over meI believe, Oh I believeEvery now and then soft as breath upon my skinI feel you come back againAnd I believe
cmd says:
September 6, 2010 at 9:17 am -
Love to you all. <3
Gloria says:
September 6, 2010 at 9:15 am -
I know what a sad day today is for all of you, and I am sorry you have to experience the pain this date brings. The work you are doing to find a cure for this hated disease is remarkable. Thank you for all your hard work.
Casey Komm says:
September 6, 2010 at 9:04 am -
Sending all my love to the family. Love you guys!
Amanda Cavarella says:
September 5, 2010 at 9:31 am -
I love you and miss you Jacquie. Not a day goes by where I do not think of you and your family. I am always believing. MIss you lots JaxLove,mandz <3
Anonymous says:
September 4, 2010 at 1:23 pm -
Hi Jax we miss you so much, the emptiness will never go away. We miss your smile your laugh…we miss you. We went to Rascal Flatts last night and you were there, you will always be with us. Not a day goes by without something making me think of our Tink and how much we miss you. I can’t believe it has been 2 years…It doesn’t get any easier. Keep smiling down on your Mom and Dad and TJ…They are working so hard to make your dreams come true. Constantly BELIEVEING….always missing and loving you!!
missy says:
September 3, 2010 at 9:25 pm -
Dear Sharon , Thinking of you each day,always in my prayers. Missy
Keesha says:
September 3, 2010 at 11:05 am -
always believing, always missing you jax. always amazed by Sharon, Torey and TJ. i love you all.
Colleen Adam says:
September 2, 2010 at 9:55 pm -
I’ve started my past three years teaching incorporating Jacquie’s “Life” poem into one of my lessons for my 7th graders. This year they had to write a poem about choices and I included hers as an example…I wanted to share a few poems they wrote with you so you can see how her words are inspiring students: “Life is like a road sometimes you can see so clearly other times it dark, filled with confusion. Thoughts as black as night You choose the road you take how fast you travel and where you want to go. Others may crash. Some may fall out of line its your choice, your path, you be the driver of your own life, you find your own road” “The sun shines bright Gone is the night Time to begin a new day Do I want to get up and study or go outside to play? My life is all about decisions In my mind, I see my future through other’s visions I must study hard to move ahead Making many sacrifices in my life instead To be a great doctor is my choice Instead of store clerk or singer, rejoice! I want to heal people and save lives My days of sleeping will soon be deprived No longer a kid with carefree days Do I really want this or is it just a phase? No, I believe this is what I want to do Medical profession’s what I am into Fixing people with cuts and broken bones Diagnosing diseases still unknown Do I want to be a surgeon or pediatrician? It really doesn’t matter saving lives is my mission I will treat any person white or black I will be the doctor to pick up the slack No matter what the condition will be I would hope that the other doctors agree For a decision could be a matter of life or death Will I show regard for the patient’s last breath?” and then a sad one that reflects the opposite of your own pain but is so powerful, especially from a 12 year old: “The water drifts away each day I have to wake up to a new beginning where I have no woman to look to I have to see that it’s not my fault But I have to choose what I want to do I want to see the one that held me in her arms but I know she is very far I look up each day at a star and make a decision to stay” Jacquie and you all are in my thoughts every day…<3 Colleen
Jackie from Kenmore says:
September 1, 2010 at 2:19 am -
This might be too long for you to read. I didn’t plan on it being so long.It has taken me so long to look at this website again although I haven’t forgotten about you, your daughter and your family.I stopped reading after a long time because I couldn’t go back to those feelings I had at that time in my life when I started to read about you. I used to read the obituaries everyday. Trying to figure out how old he or she was when they died? Trying to figure out how they died. Was it cancer? an accident? I would find comfort when I felt the people lived long lives. Though their family would want more days with them they seemed to follow the “natural” course of life. That is how I came upon your story. I used to read what you wrote almost everyday. I thought you could put into words so perfectly about a mother and a daughter, about a mother and her children. I thought you could understand the pain, fear and feelings of being apart from them. Thank-god I have never had to actually feel those feelings but the thought of them scared me beyond words. You may remember a few of my messages I sent you but probably not. I found out more then five years ago right after the birth of my youngest daughter that I had a brain tumor. The outcome was uncertain. I spent too much time in MRI machines and doctors offices. Everything was going well, no changes in my scans at all. The tumor was behaving very benign. The whole time my only fear was being away from my children. As you know children need their Moms forever. They cannot be apart. Then I experienced another fearful reality. I started to have grandmal seizures. They were difficult to control, and at times they seemed too much to bear. Not for me but for my children. I felt lucky it was happening to me and not to them. I couldn’t drive for a long time. The medications were tough and will have to deal with that part for the rest of my life. It seems almost foolish to even mention these, what seem like small obstacles compared to what you have been through.I feel ridiculous thinking that it was all that bad or is that bad. I have to say I was kind of counting time as do you. I just kept wanting to make it to certain milestones with my kids. I wanted to make it to at least see my youngest turned five. I wanted to watch her go to kindergarten. They needed me to be there. I wanted my kids to beable to get to ages when they could have memories of me. I would think, how old do they have to be to have memories of me? I have to make it until then. The list is endless. I always thought I’m going to be the absolutly best Mom I can be as long as we get to be together. Some kids don’t have Moms and my kids will have the best one as long as they can. They will never see me struggle or be afraid. I take pride in the fact that I have done this pretty well. Kindergarten, middle school,boyfriends, everyday advice I can give them I need to be there. I would think- I have to get them until they can can be independent. They would always need me but what is it 18? 21? what age will they be ok? After I kept experiencing these times and “milestones” I just keep wanting more and more. I realized it will never be enough. I realized I will always keep wanting more and more and will cherish, with every bit of myself, every second I get with them. It truly is a gift. I know I went on for way too long. For some reason I feel I can express to a stranger, what I can’t to the people I am closest to. It looks like I get to be with them for a long time more. Things are going well. The tumor is still there, the seizures are still there, the scans will continue, but I am ok. I am going to be ok. I will be here and with them for a long long time. Though our experiences have been so different and yours an actual reality and mine just a fear. You actually helped me through it. What you wrote made me feel like someone can really understand how I feel about my children. I read the courage and heartache you have experienced. You are a brave and an unbelievable person. Even though it doen’t always feel that way. Jacquie has the best Mom ever. You are always her Mom. I will continue to cherish every second with my kids. I feel, as do you, that I was given the absolute best children ever. How did I get so lucky? You are also got the best children a Mother could ask for. I hope it is ok, but I copyied you when my son started asking me what happens when you die. I tell him we (our family) is a little “five pack”. No matter where we are we will always be together. Our little five pack. I am sorry this is so long. I am sorry it is all over the place. I am a horrible writer. I just wanted to Thank-you. Thank-you so, so much. Now all I have to do is hit the enter button. Jackie
Sara (albuquerque) says:
August 25, 2010 at 2:28 pm -
Remembering everything, along the way and sending to you Sharon, Torey and TJ an extra breath when you so much need one. Always caring, always missing, sending a hug…and fyi-Shelby makes my kids hearts smile every time! ~It is so tough, still, and always.
alicia says:
August 24, 2010 at 1:02 pm -
another day of missing you and loving you and still BELIEVING! xoxo alicia
Anonymous says:
August 22, 2010 at 8:10 pm -
I miss you more than ever Jax. With each passing day I struggle to comprehend why you are not going through life beside me. It was always the two of us and in my heart, it always will be. Keep a close eye on us, but fly high in heaven on those wings my angel Tink. Love Always and forever, your big brother.
alicia says:
August 18, 2010 at 12:57 pm -
still thinking of you and missing you and loving you every second of every day. i recently went on vacation with some of beege’s family and had the chance to tell the kids that i knew a REAL tinkerbell and a real angel! and i told them all about you and how beautiful you are, and how funny, caring, and strong and brave! i miss you beautiful angel, oh so much. some days it still doesn’t seem real. xoxo <3 alicia <3
Amanda Cavarella says:
August 18, 2010 at 12:25 pm -
i miss you so much Jacquie. Thinking of you all each and every day. love mandz
Kim says:
August 18, 2010 at 12:12 pm -
Love and miss you so much…..
Sadie says:
August 14, 2010 at 2:12 pm -
Thinking of you and thinking of Jacquie always. <3
Anonymous says:
August 9, 2010 at 8:43 pm -
everyday I ask “WHY?” & everyday may heart aches. I miss Jacquie so much!!
Anonymous says:
August 5, 2010 at 10:55 am -
Dear Family, It has been almost 2 weeks since the Tinkerball and I continuously think about that night and how amazing it was. Not only did I have the best night of my life, but while I was having so much fun, I knew that all of this time, effort, hard work, was all for Jacquie and that is what made my night so very special. I am so thankful for being apart of raising money for Jacquie’s foundation and over all, being apart of remembering her. I will never ever stop supporting this foundation because it has touched my heart and has changed my life along with so many others. So I thankyou all for allowing me to be apart of this journey to continue to honor Jacquie Love Always, Natalie Maranto
Anonymous says:
July 31, 2010 at 5:22 pm -
Life isn’t fair… You should be here… I miss you and I love you…
Anonymous says:
July 23, 2010 at 12:31 pm -
just sending some love to this beautiful family. The four of you are wonderful…
Casey Stiokas says:
July 22, 2010 at 10:07 pm -
Last weekend I was at home, and my dad asked me to help brush our dog, Baby’s, teeth. She is a 9 year old rescue dog (a pug of course) and she has dental issues and needed 9 teeth removed recently, so brushing is a daily routine that she must endure. After her surgery, my dad went out to buy an extra-soft tooth brush for her, and the only one that happened to be left was a pink Tinker Bell brush. How fitting. I know Jax would have loved our Baby Cakes, and I know she played a part in helping her find us, and now we are reminded of her once again, each night as we complete the routine. TJ, I can still hear Jax’s laugh too and see her nose crinkle as we cried because we laughed so hard over the “eeking” story the last time I saw her. I hope that that sound and that memory never ever fades for either of us. God bless, always praying and always, always BELIEVING. Casey
Sue P says:
July 22, 2010 at 3:18 pm -
Dear Sharon & Family; I’m so sorry that I missed the “Ball”! I really looked forward to being with my boys & possibly getting them to dance with me but unfortunately it was the day my brother “Stan” became ill. Well now we’ve got another angel to look over us and Jacquie is going to have her hands full with that one! So don’t you dare not have the “Ball” again next year because I WILL BE THERE!! I’m so glad it was a success.